Sunday, May 22, 2011
Addisons life....
-Amoxicillan 2x day.
-Allergy Medicine 1x day
-Probiotic 1x day
-Ibuprofen as needed for continuing mysterious fevers
We still don't really know what is going on with her. As Dr Hoyt put it "something is going on in her immune system. We just don't know what." So the appointment on Wednesday did not give us the answers I was hoping for, but instead orders for tests.
Thankfully, most of the time she is happy and playing away. Here she is singing with her kitty.
Monday, May 16, 2011
Perfect day for a fieldtrip
Today we went on a field trip to a park for preschool.
We looked for ducks....
we used our binoculars......
we played at the park......
And had LOTS of fun on the tire swing with our friends!
Saturday, May 14, 2011
So happy together
These 3 have never spent more than an hour or 2 away from one another since they came home from the hospital as tiny preemies. I think they missed each other while Addison was in the hospital. One of the reasons I am jealous of my own children...the special bond they have!
Friday, May 13, 2011
An update on Addison
Where to start...
Around Valentine's day Addison developed hives on her torso and back. We took her to the MD where they of course tested for allergies and found no allergy to the big allergens (peanuts, dogs, eggs, dairy etc). We were referred to an allergist.
A couple weeks later she developed fevers and her face started swelling in the morning and her hives spread to her face, legs, and arms. She was diagnosed with strep along with the rest of the family. The allergist stated her hives and swelling was a full immune response due to a virus she had in February and gave some medicine for it. It worked at keeping the hives calm (still there but not the big red welts they had been).
Then around Easter the hives came back full force as well as sporadic fevers. She also started complaining of some leg pain and being tired. Back to the MD we went. She ran more tests and consulted with the rheumatologist who stated she did not think it was something rheumatlogy needed to see her for since the leg pain only lasted 2 days. The hives continued as big red welts.
On Monday I took her to the MD because we thought she had a UTI. She did not have one. At this point our excellent peditrician, Dr Scherer pieced together the hives mixed with fevers and called an infectious disease MD at Childrens, Dr Hoyt. Dr Hoyt told Dr Scherer a bunch more tests to be run and recommended a combination appointment with infectious disease and rheumatology.
On Tuesday Dr Scherer called with some lab results and stated that after consulting with Dr Hoyt and looking at the results of the lab the best idea was to admit Adddison so that all the specialists involved could see her.
Addison was admitted to Childrens on Tuesday afternoon. She was fine, happy and playing away. 5 blood draws, 1 echocardiogram, 1 EKG, numerous swabs, and consults with Infectious Disease, the hospital pediatrician and his residents, cardiology, and one of the leading experts in Rhuematic Fever later she was discharged.
No diagnosis has been given, but it is looking like it is Rheumatic Fever. A very rare presentation of rheumatic fever that the expert in Rheumatic Fever said he has only seen in 2 other people during his career. We have a combination appointment on Wednesday with Dr Hoyt and Dr LaPlante (rheumatology) to get a final answer and plan for treatment. One MD put it best when he said "this is Saudi, United Emirates care you are getting here. I had to use one of my nine lives to get this appointment!" We feel very lucky to live in an area that allows us to see the experts! We also have to see an opthamologist and a dermatologist.
The good news is Addison's presentation of Rheumatic Fever is not typical. She does not have heart damage and she does not show symptoms of arthritis (the leg pain she has is likely due to the inflammation from the hives). So hopefully we will be on a LONG course of anitbiotics and won't have any lasting effects from this illness. She is NOT contagious so no worries there.
We will hopefully have a final answer on Wednesday and will keep everyone posted.
A VERY SPECIAL thank you to my mom for coming at staying at our house while Addison was in the hospital. We could not have made it through this week without her!
Around Valentine's day Addison developed hives on her torso and back. We took her to the MD where they of course tested for allergies and found no allergy to the big allergens (peanuts, dogs, eggs, dairy etc). We were referred to an allergist.
A couple weeks later she developed fevers and her face started swelling in the morning and her hives spread to her face, legs, and arms. She was diagnosed with strep along with the rest of the family. The allergist stated her hives and swelling was a full immune response due to a virus she had in February and gave some medicine for it. It worked at keeping the hives calm (still there but not the big red welts they had been).
Then around Easter the hives came back full force as well as sporadic fevers. She also started complaining of some leg pain and being tired. Back to the MD we went. She ran more tests and consulted with the rheumatologist who stated she did not think it was something rheumatlogy needed to see her for since the leg pain only lasted 2 days. The hives continued as big red welts.
On Monday I took her to the MD because we thought she had a UTI. She did not have one. At this point our excellent peditrician, Dr Scherer pieced together the hives mixed with fevers and called an infectious disease MD at Childrens, Dr Hoyt. Dr Hoyt told Dr Scherer a bunch more tests to be run and recommended a combination appointment with infectious disease and rheumatology.
On Tuesday Dr Scherer called with some lab results and stated that after consulting with Dr Hoyt and looking at the results of the lab the best idea was to admit Adddison so that all the specialists involved could see her.
Addison was admitted to Childrens on Tuesday afternoon. She was fine, happy and playing away. 5 blood draws, 1 echocardiogram, 1 EKG, numerous swabs, and consults with Infectious Disease, the hospital pediatrician and his residents, cardiology, and one of the leading experts in Rhuematic Fever later she was discharged.
Some pictures to prove how NOT sick she is acting!
No diagnosis has been given, but it is looking like it is Rheumatic Fever. A very rare presentation of rheumatic fever that the expert in Rheumatic Fever said he has only seen in 2 other people during his career. We have a combination appointment on Wednesday with Dr Hoyt and Dr LaPlante (rheumatology) to get a final answer and plan for treatment. One MD put it best when he said "this is Saudi, United Emirates care you are getting here. I had to use one of my nine lives to get this appointment!" We feel very lucky to live in an area that allows us to see the experts! We also have to see an opthamologist and a dermatologist.The good news is Addison's presentation of Rheumatic Fever is not typical. She does not have heart damage and she does not show symptoms of arthritis (the leg pain she has is likely due to the inflammation from the hives). So hopefully we will be on a LONG course of anitbiotics and won't have any lasting effects from this illness. She is NOT contagious so no worries there.
We will hopefully have a final answer on Wednesday and will keep everyone posted.
A VERY SPECIAL thank you to my mom for coming at staying at our house while Addison was in the hospital. We could not have made it through this week without her!
Monday, May 9, 2011
In the garden.
I was lucky enough to get 3 little helpers in my garden.
Morgan dug right in.
Addison decided to watch after digging one hole and realizing her hands were getting dirty.
Eli had more fun throwing dirt.
Everyone enjoyed the watering.
I can't wait to eat all of those yummy veggies!
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